Awareness never ends

With endometriosis awareness month ending, it doesn’t mean that raising awareness is over.  Doesn’t mean that endometriosis is over because it will never be over. From raising awareness to trying to find a cure.  This is such a tricky disease because there are so many moving parts to it. It has to start at the top with ACOG,  because women need proper standards of care. 

Many of the surgeons are out of pocket and are not covered by insurance which means loans and anything else you can scrounge up just to pay. I was fortunate enough for my last surgery to be covered through a gap exception. I did have to cough up money for the initial visit which was a couple hundred dollars and to some,  they don’t have that type of money laying around. Even if you are one of the lucky ones that get things covered, there are still aftercare that insurance doesn’t cover. Certain things like pelvic floor therapy, acupuncture, massage, Physical therapy and other things that help ease the pain are out-of-pocket.  I have seven pelvic floor sessions scheduled each appointment is not covered by my insurance so therefore it’s about $150-$200 per session which is something that is needed to ease the pain. That is totally bullshit because it something that women need not even women with endometriosis  I know women that need it and don’t even have endometriosis. 

This is only a snapshot of what women are going through with this disease. It is not easy financially that’s for sure. So even though endometriosis awareness month is coming to a close the door way remains open to fighting every single day.