It wasn't until a few years ago that I began to really use my voice when it came to this disease. I really wanted those that were uneducated to understand, and I wanted those that had endometriosis to know that they weren't alone and to seek out true excision specialists. I was really honored and blessed to have spoken to school nurses last year on behalf of endowhat, it was a bit scary to be in a room full of strangers but after I spoke it made me want to change the world. So I tried reaching out for an upcoming event. I saw that a few people were talking on a panel and I was wondering well why not me? Well that blew up in my face because I was tossed aside. That honestly brought back so many memories.
When I was in middle school, I was bullied. I honestly had all of one or two friends at the most. No one stuck up for me. I was called penguin because when I walk one foot goes out a bit, not like I waddle but I thought it was completely normal. I was called banana because of the yellow winter jacket I wore one winter. I tried so hard to fit in and make friends but to be honest no one wanted to be friends with me back then. I feel like that rejection I just had brought me back. I just don't understand why I am the black sheep of this community. At the event I attended last year I spoke with many women wishing that they had someone advocating for them and I even touched base with a mom who wants me to help her daughter.
I may not have my name on billboards, I may not be rich, I also may not have a huge following but if it’s one thing I’m good at and one thing I deserve it is to be heard. And if it’s not at the summit because I was shot down then that’s fine their loss. I’ll get my voice heard some other way. Honestly it just makes me want to up my game even more. You can break me and you sure as hell cant make me feel worthless. Not going to happen. This community shouldn’t shun people they should welcome everyone. That’s my mission. No endo sister left behind. So if you are feeling alone I’m here. I will listen.
Tuesday, January 22, 2019
Wednesday, January 2, 2019
The beginning of a new year
Currently emptying my brain of all of last year and moving forward. It's always good to de-clutter once in a while. I do wish that I could have at least a month without an endo flare but we are two days into the year and I am sitting here typing with my heating pad on Aruba hot. I went off keto from X-Mas until yesterday so I am sure that played a huge part. Just went back on today so I am hoping my body will be back to normal. This disease is so bizarre and it's just like an endless tunnel that leads to nowhere. I can't wait for the summit coming up to figure out why two years later my body is failing me yet again. Why is it always around the two year mark that my symptoms come back. It's truly a mystery. And here I was trying to de-clutter but I guess this sticks around. Which is funny because endometriosis does stick itself all over the place so how fitting. I will say that diet does alleviate some of the symptoms, for me at least. When I was doing the keto thing for the last year I lost 20 lbs. With that, I lead a normal routine typically ate the same things daily and I actually had less flares. So I am hoping that I can keep the flares at bay by going back on the diet. It truly is a lifestyle change but you find a way to adapt. I am looking forward to this year, hopefully more changes coming my way. My goal is to find lots of new things and put my degree to use. I want to see the world and do a little soul searching along the way.
Onward!
Onward!
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